Katie update –
Dr. Max called yesterday afternoon with a probable diagnosis. They think that Katie has ALPS (autoimmune lymphoproliferative syndrome), which is a genetic disorder.
She is hoping the NIH (National Institutes of Health) will do the genetic testing b/c they will be able to get more specific and detailed information that she will be able to.
What specific type of ALPS (or if it’s one of the disorders that is really close to it) changes what type of treatment we’re looking at.